Tuesday, May 22, 2007

May 22 Report

Mike continues to work hard on his memory and cognitive deficits. His attitude is strong and positive with his social skills very much intact. Therapists have recommended another month of therapy, focusing on connecting real life situations to real things. Although he cannot be left alone yet, he has been more active, participating in boating activities, organizing his garage and even swinging a golf club. This weekend Suzie is taking him on a birthday road trip to Walla Walla.

Susie and Mike deeply appreciate the continued support and love. Mike’s day is brighter when he receives cards and phone calls.


At this point, the blog will be updated periodically with special announcements and progress.

Saturday, April 28, 2007

A Message from Dr. Frank

Mike and I met with Dr. Dan Frank for the first time since his
hospitalization. Mike was worried that he would not recognize him but as
soon as he saw him he remembered him. Mike was tested as well as examined
and Mike was relieved by Dr. Frank's explanations of what was happening to
him such as memory loss, unusual body sensations, loss of balance and
inability to express himself or find words. Dr. Frank explained all these
concerns in such a way that Mike not only understood but knew that he was
able to communicate with Dr. Frank in a meaningful way.

After we left, Mike said, " What a great guy. We're really lucky to have him
plus..........he thinks I married a great girl!"

Mike talked with family later and told them what a blessing Dr. Dan is to
us. The following is a brief synopsis of Dr. Frank's observations. God bless
you Dr. Dan Frank!
Suzanne



I had the pleasure of seeing Mike in the office today. He has made an extraordinary recovery from his meningitis. Mike's core personality and identity are completely intact. His word finding difficulty is much better than before, and his short-term memory is intact. He has some difficulty with attention and sustained concentration which is not unexpected, and I anticipate that he will continue to show good improvement in the coming months. I look forward to seeing Mike again in a month. Mike's infection caused the death of some brain cells, but, like most patients, Mike shows that he is able to re-route those connections and make a good recovery from his illness.

Best wishes,

Daniel Frank, MD

Thursday, April 26, 2007

Friends continue to show their love and support for Mike and Suzie. Even
though Mike is unable to drink alcohol at this time, a ginger ale tastes as
good as his Ash Hollow wine when toasted with friends.



1

Saturday, April 21, 2007

A Team Effort

After 14 days of intense speech, occupational, and physical therapy, Mike had his first rehab “team evaluation” on Thursday during a conference call that included Suzie and the Rehab Without Walls case manager. Mike’s therapists reported as follows:

PT: Mike’s currently working on 2 separate programs and a third will eventually be added. Physically, muscle memory patterns are improving, and his gait strengthening is coming along well. Ultimately, the goal will be to add a third, more difficult layer of activity to challenge Mike’s balancing skills, which should help improve his cognition, as well. Mike’s physical therapist has found that breaking down each activity into very small steps with repeated instruction, helps Mike stay focused and results in more wins for Mike!

Speech: Mike’s main speech focus has been development of external memory systems to help him with long and short term memory. His routine includes a daily schedule, and the use of a day planner, bulletin board, and “significant life events timeline.” He’s now able to concentrate better on paper & pencil tasks, with less fatigue. Although he needs a great deal of help with his planner, completing worksheets, and recall, in general, Mike’s putting forth tremendous effort and his therapist sees “nice improvement” overall in his ability to work on improving his cognitive skills.

Occupational therapy: Mike’s occupational therapist shared that Mike is a “special person to work with.” While repetition and check lists are still a critical part of Mike’s day-to-day activities, he’s able to concentrate for longer periods of time and has made small gains in balance and task endurance. “Cueing” is an important element in Mike’s ability to perform activities at this point, and his results are inconsistent from one day to the next. Mike’s progress to date doesn’t allow for him to be left unsupervised, as yet, due to a condition called “motor planning apraxia,” (inappropriate use of objects), which creates safety issues.

Counseling: Working with a counselor has been an important part of the recovery process for both Mike and Suzie. As the “point person” in Mike’s recovery, Suzie benefits from the support and coping strategies offered to minimize her potential for burnout. Friends and family are a huge contribution to Suzie and Mike’s wellbeing right now. When Mike shares a few hours with a family member or friend, Suzie is able to run errands, complete tasks around the house, or simply relax a bit, herself, knowing Mike is safe. Mike’s courage and determination are boundless, but he does become frustrated and sad, at times, which he is learning is to be expected under the circumstances.

Mike’s team of therapists all agree that it’s too early for any reduction in rehab services at this point, and a written report will be submitted to the insurance company recommending an additional 4 weeks of ongoing services for home and community orientation. The entire team hopes that the small gains seen now will turn into large breakthroughs with more time, patience, repetition, and therapy.

Mike and Suzie continue to be awed by the love and support extended by friends and family and thank everyone for each and every contribution to Mike’s Miracle.

Friday, April 13, 2007

"Just like school"

Yesterday Mike spent an afternoon with family at Snoqualmie Falls. He hiked around the area, navigating stairs and slopes with ease. Afterwards, he enjoyed a wonderful lunch of Ahi tuna. The outing provided Suzanne with a much-needed two hour break.

Mike's jovial attitude and spirit is a pleasure to be around. He is fascinated with life's many details such as dogs at Starbucks, train trestles in the distance and turtles on logs.

Mike continues to work hard on his cognitive abilities- chronology of life, short term memory, word recognition and recall. His therapists have him reading and writing in a daily notebook- which he commented is "just like school." The occupational therapist put him to work by practicing daily routines like emptying the dishwasher and making sandwiches for guests. When asked about his illness, he cannot recall anything about his weeks in the hospital. His first memory is of walking into his home.

Susie and Mike are very appreciative of ALL the support, prayers, helping hands and greeting cards. Mike reads aloud the cards to Susie who is including them in a scrapbook.

Saturday, April 7, 2007

Mike's Perspective

We met Mike’s PT today and Mike just loves him. He really pushed Mike. Walked the property, did hip rehab exercises, Light weights for upper body and walked in the park with us for a full evaluation. He said Mike is very strong but a little unstable and needs athletic shoes for outdoors and both canes. He was quite impressed with Mike physically and will reinforce the ongoing occupational and speech therapies where Mike needs the greatest help. Mike still has serious memory loss, word loss and expressive/cognitive defecits. It will all come back over time……patience, repetition, therapy.

We met with Mom’s neighbor at noon. Jeanne Hess is a holistic nurse and has had several very serious head injuries. She spent time with Mike discussing her frustrations with her recovery which is still ongoing. Her last accident was in 1999. Mike expressed several interesting insights. He said:

“ I feel that I can’t catch up.”

In groups of people, “ I feel discombulalated.”

"My loss is worse physically."

“I feel like I’m going to tip over. I need spatial alignment. My canes give me groundedness." He pointed to Suzie and said, "You’re the one I use to be grounded, physically and emotionally.”

“Depression means you give up.”

“ Sometimes I feel sad and sinking.”

Some great insights from Mike, don’t you think?

Jeanne then did a healing meditation using guided imagery and hands on energy work. It was a very peaceful experience for Mike and he seemed rested afterward and was very grateful for her time and sharing with him.

Suzanne

Wednesday, April 4, 2007

Spring picnic

After a couple hard days with Mike's spirits being low, Susie arranged a walk with Mom around Lake Washington. Friends surprised them with dinner at a picnic table. Smiling Mike laughed for an hour! A special thanks to George and Barbie for providing the wonderful picnic dinner.
Thanks again for the cards and calls especially Skip from Arizona.

Monday, April 2, 2007

New Evaluations

Mike was evaluated by three therapists today which is part of the Rehab Without Walls, a division of Gentiva. He will receive 17-23 hours of focused therapies per week. The bulk of the sessions will address memory, reading, writing and general cognition. Overall, the therapists were very hopeful for his recovery and anticipate seeing a marked improvement by the end of the month. They also feel he may be left unsupervised for short periods in three to four weeks. He will be reevaluated at the end of April.
Suzanne recommends socialization through cards and letters for Mike to read and weekend visits of brunch and lunch. We are striving for continued consistency and balance between physical exercise and rest periods.
Susie and Mike are thankful for the supportive messages, meals and prayers you send.

Sunday, April 1, 2007

Sunday April 1

Mike and Susie give their heartfelt thanks for the many prayers, cards and thoughts with which you continue to honor them.

Mike is working very hard to orient himself to home and surroundings. His short and long term memory are still greatly affected. Small finds happen daily and they celebrate each old memory. They know the road is a long one as Mike won't be able to drive for at least six months. As you know, Mike as the gracious host, and he tends to overextend himself with visitors. The results are confusion and tiredness.

Tomorrow the rehab team will be doing an evaluation and will be developing a treatment plan for April which will be posted on the blog.

Susie thanks God daily for Mike's attitude and spirit along with all of your support that continues to lift them.

Thursday, March 29, 2007

Mike Goes Home

Yesterday, Shawn and Susie took Mike back home to Cougar Mountain. Although Mike is not very familiar with his surroundings, he has his "home" environment to explore and is making connections . He was able to sleep through the night- a whole 12 hours!
Today Susie took him to the park on a 1/2 mile loop walk, shopped at Costco and he read magazines at Barnes/Noble. They are settling back in and are enjoying their time together back home. Therapy starts up on Monday.

Tuesday, March 27, 2007

Mike's Goal- Home by March 31 !

Mike has set a new goal to go home by March 31. He continues to work hard with his therapists. Yesterday he took a walk outside around the block with Suzanne, Mom and his PT. He was a little overwhelmed by all the new stimulation, but did quite well with the physical part. When the meningitis penetrated the mastoid (on the left side) the speech and communication center of the brain was affected. The meninges is still inflamed, which has caused comprehension, memory and speech problems. The neurological recovery will be slow but Suzanne and his doctors are very optimistic, looking for much improvement in about three months. Mike still needs 24 hour care at this point.

Keep the miracles coming through all your love and prayers.

Sunday, March 25, 2007

Spirits are Strong- Saturday

Mike spent a day with his rehab specialists, showing continued growth and improvement. He meets twice a day with his speech, occupational and physical therapists working intensely on many tasks. It is exhausting for him, but he continues to make more and more connections.

Some buddies from University of Montana called and visited and had Mike laughing about old times. A special thanks to Terry, Kelly and Lee who lifted everyone's spirits.

Mike has been moved to room 633 across from the nursing station.

Friday, March 23, 2007

Friday Evening 3/23

Mike has had a busy day with evaluations and therapy from Speech, PT and OT specialists. His body is strong and his new hips are working perfectly with no pain.

The hardest work for Mike right now is memory, word association, cognitive skills and speech. Because of the aggressive therapies to rehab him, he needs periods of total rest and lack of stimulation. Therefore, we ask for no visitations until further notice. We need your continued love, support and prayers for his full recovery.

Suzie spends at least 12 hours a day at Mike's side assisting in communication. She receives your messages but is unable to return each call. She is lifted by your voices of concern and love and sends her deep gratitude to each of you. Please continue to reach out. Mike is able to read and loves getting cards from you.

Home address:
6264 168th Place SE
Bellevue, WA 98006

We have no report yet as to a potential return to home. Thank you ALL for your part in helping Mike be a MIRACLE.

Visitors Limited

Your love and support is greatly appreciated, but we need to limit visitors. Mike's focus needs to be on himself right now, for his health, concentration and learning to continue positively. I will post specialists' results later this evening.

Thursday, March 22, 2007

Thursday Evening.....A little update

A more complete rehab evaluation will be happening on Friday. I will update the blog with the results.

Thursday-Swedish Cherry Hill Hospital

Mike moved this afternoon to the Swedish Cherry Hill Hospital (Room 649) where they can focus on his assessment and rehab. This is another move forward. Let’s allow him to get settled in and oriented. Tomorrow we will better understand the visitation programs. Way to go Mike!

Wednesday, March 21, 2007

Wednesday Evening-Rest needed Thursday

Mike's has had a couple of days of slower progress but nonetheless
continues to improve. On Thursday we are going to limit visitors
to allow Mike time to rest as his sleep has been inconsistent.
Please continue to pray for strength for Mike and Suzie as this is a
difficult road. Let's do all that we can to lift their spirits!

A Special Massage for Suzanne-Wednesday AM

Yesterday Mike looked up at Susie and asked her to sit down next to him as he patted his bed. When she moved in next to him, he begin to massage her back. Mike may not have all the words to express his thoughts but his actions speak of love and thankfulness.

Mike continues to grow stronger. He has been taking his daily walk around the tenth floor, shaving, bathing and feeding himself and making keen observations- commenting on helicopters near his window, comparing glowing Seattle sunsets with ones from San Diego and asking Kevin and Rose 'How are things in Olympia?'.

However, his language development and recall are frustrating to him as he searches for words and thoughts to connect them. He has also had some restless nights as his sleep patterns have been short and inconsistent.

Thanks again for your support and love.

Sunday, March 18, 2007

Sunday Morning-day of rest

Suzanne has requested that Mike have a complete day of rest. Please send your thoughts and prayers but no visitors today. Thank you.

Saturday, March 17, 2007

"Maybe in two weeks" Friday/Saturday

While scanning a fishing magazine, Mike's friend Jim asked when he would be ready to go fishing. He looked up and responded, " Maybe in two weeks".
Mike has had a very busy and productive two days. He shaved and bathed himself this morning, walked the 11th floor loop, and continues to feed himself. While on his walk he recognized and read an Ireland poster and a painting of the Walla Walla hills. Yesterday Karin led Mike in a 1.5 hour spiritual meditation. He emerged alert and refreshed.
All of the doctors and specialists (physical, occupational and speech) are extremely positive about his progress. The meninge is still infected but there is no brain damage. He just needs time and love. He has both in abundance. Thank you all for your continued love and support.

Thursday, March 15, 2007

Thursday - New room -#1015 10th floor

After a good night's sleep, Mike had a healthy breakfast of Cheerioes and pancakes. The physical therapist had him stand briefly on wobbly legs and will be working with him daily. He continues to work on language development and memory recall, trying hard to find words that match his thoughts. When asked who he was rooting for he read from the muted TV, "Indiana". (Too bad, Zags.) He is adjusting to his new room.

Wednesday, March 14, 2007

Wednesday Afternoon

Mike continues to make small steps towards recovery. He fed himself, works hard on finding words to complete thoughts and has been able to move his toes and fingers on request. Recognition is still a challenge. Continue to pray and hold positive thoughts.

Tuesday, March 13, 2007

Tuesday Evening

Mike is working very hard. He is able to form some words and small sentences but can become frustrated when the words are lost or can't be found. He is less agitated tonight after a tough day. ALL your thoughts, prayers and love are deeply appreciated and needed.

"I'll see you later"

More progress-Mike verbally responded to the the doctor today as he left his room- "I'll see you later." He also was able to eat a small helping of apple sauce.

I will have more information this evening.

Monday, March 12, 2007

One in a million....

Dr. Hough reported that he has never had a patient with such a severe case of spinal menengitis and live. He stated "he is definitely one in a million."
Mike continues to be very responsive to his surroundings- reaching out for necklaces, smiling, opening cards, tracking colors and even a spoken "Yea." The respirator has been removed.

Monday- More encouraging news..

The white light of hope continues to shine. Mike had a restful evening followed with bright moments of alertness and small moments of activity- movements in hands, raising eyebrows, trying to rearrange himself in his bed and a SMILE for everyone. (: (:(:

The last report said he was even watching sports on TV.

Sunday, March 11, 2007

And some more promising news..

Two medical reports-the EEG report is normal plus his lungs are 'perfectly' clear.
Suzanne told Mike he is the love of her heart and he reached up and touched her pearl necklace.

Sunday Afternoon

Miracles are happening- Mike has responded with eye contact on three different occasions. He is able to voluntarily track guests in his room. He has been responsive to Suzanne's voice and seems to be gaining some stamina with his alertness. It's a wonderful birthday gift for Suzanne.

Sunday Morning

Mike developed some seizures in the night and this morning. He is being treated with anti-seizure medication to reduce them. Our family thanks ALL who are giving support, love and prayers.

Saturday, March 10, 2007

Early Saturday Evening

Mike is still in a coma state resting comfortably. He did attempt to open his eyes around 4:oo which is another very positive sign. Keep the prayers coming.

Saturday Noon

Mike has responded- Just a few moments ago Mike moved his foot on verbal request, he squeeezed Suzi's hand when asked, and tried to close his eyelids when they were held open.
He also flinched when his eyelashes were stroked. Hold on to these incredible moments of HOPE! Keep praying.

MRI scan results are promising. There is no sign of brain swelling as it is confined to the meninges.
This is very good news.

Friday, March 9, 2007

Friday evening update

A team of doctors met with us and decided it would be best to place Mike on a respirator to assist his breathing. He is resting more comfortably.

Diagnosis

Mike has been diagnosed with spinal menengitis. His vital signs are strong, but the bacterial infection has created tremendous stress to his system. Overall, his condition is serious. He is resting somewhat comfortably, but not conscious to his surroundings.

The best way you can help at this time is to be positive and to send your thoughts and prayers to Mike and Suzanne via this blog. We will make sure they get your messages.

We will do our best to keep you informed so be sure to check the blog periodically.

Your love and prayers mean the world to Mike and Suzanne.